A note from Shauna Wiebe McNarland -- We will be walking/driving in the Morden C&A parade. If anyone would like to join us in the parade we would love to have people join us. We will have a truck with lawn chairs in the back for anyone that wouldn't want to walk. The parade is August 22nd.
Our Summer newsletter is now available. To read it, visit our newsletter page.
All the tax receipts have been mailed out for pledges and donations for the walk. If you are expecting one but have not yet received it by August 15th, please email me at firstname.lastname@example.org.
All tax receipts must have your full address on them. Please let me know if anyone needs me to reissue a receipt due to misspelling.
Thank you so much for making our 1st Walk such a huge success.
Marion Pacy, President
Scleroderma Association of Manitoba
Big thank you to Valley Gardens Middle School. They recent fundraising brought in $546.51 which will go towards research. Following is the note received from Crystal Lang about their activities. To see more photos, visit our photos page.
On behalf of Valley Gardens Middle School, I just wanted to thank you for the pins, pamphlets, bracelets and bottle openers. Our awareness and fundraising event was a great success! We raised $546.51 for Scleroderma research!!!
Our Builders Club group, under the direction of myself and my colleague, Brenda Ward, began our endeavor during the first week of June. I spoke to our group of 20 students about what Scleroderma was, told them my personal connection and showed them a video that you had posted on the Facebook page of women sharing their experiences with the disease. They were very excited to take action.
For the awareness portion, we decided to create a Powerpoint presentation and student volunteers presented the information in 3 assemblies (one for Grade 6, 7 and 8). We also created information cards for the pins and set up an information booth in which we distributed the pamphlets and pins.
For the fundraising portion, we had 2 Freezie sales and we sold "Tie-Riffic Chocolate Bar Cards" in honor of Father's Day. When students purchased a Freezie, they received a bracelet. When they purchased a Chocolate bar, they received the bottle opener. Students and staff alike were very eager to help out with the cause.
The best part about it all was engaging our school in awareness... hearing the discussions about Scleroderma and students wanting to know more about it. I learned that others in our school community had family members affected by this disease as well.
What a fabulous day! Huge turnout --- incredible success over all. Thank you to all who made this day happen! We were also blessed by the fabulous weather. Full report and thank you's coming soon. Check out our photos section to see more of the action!
Have you registered yet for our First Annual Walk/Run for Scleroderma? Don't delay. June 28th is just around the corner -- our First Annual Walk/Run is fast approaching. To register, visit www.runningroom.com. Then do the following:
1)CLICK ON CANADIAN DROP DOWN LIST AND CHOOSE "MB"
2)SCROLL THROUGH THE LIST TO JUNE 28 AND FIND THE "WALK/RUN IN THE PARK FOR SCLERODERMA"
You don't need to leave your kids at home, not even your four-legged kids. It will be fun for everyone, fresh air and exercise while supporting a good cause. We invite you to register, then invite all of your friends to register. Look forward to seeing you there!
Today is the last day of the Official Rail Safety Week. However, it is imperative to practice rail safety year round. Pledge to be safe around railroad tracks. I just took the pledge: I, Janet Lewis Anderson, pledge to be safe around crossings and railway lines. I promise to set the right example for my friends and family, and I pledge to report any unsafe behaviour to CN Police."
Be safe everyone!
Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a hand by completing this short 10-15 minute survey!
The Scleroderma Society of Ontario has teamed up with the Scleroderma Society of Canada, the Scleroderma Foundation, and researchers from McGill University in Montreal and San Diego State University in California to learn more about the experiences of support group facilitators, support group members, and people who choose not to attend scleroderma support groups.
Your anonymous answers to the survey questions will provide a greater understanding of the important training and support needs of group leaders, as well as the reasons why people with scleroderma either attend or do not attend support groups.
If you have a few minutes to spare and are able to help with this exciting research project, please click here to go directly to the survey:
If you have any additional questions or concerns about the survey, please contact members of our research team listed below:
MS. STEPHANIE GUMUCHIAN
Research Assistant, Jewish General Hospital
Telephone: (514) 340-8222 ext. 6813; Email: email@example.com
MS. VANESSA DELISLE
PhD. Counselling Psychology Student, McGill University
Telephone: (514) 340-8222 ext. 6812; Email: firstname.lastname@example.org
From April 27th to May 3rd, CN will again this year join forces with Operation Lifesaver to promote public rail safety to communities throughout our network during Rail Safety Week. We encourage everyone to think safety not just during the official "Rail Safety Week", but every week.
Here are 10 tips that could save your life.
1. Never walk or play on train tracks. It's dangerous and illegal. Also never play or stay near a stopped train.
2. Be prepared to stop at crossings.
3. Cross train tracks at designated highway/railroad crossings.
4. Look for the crossbuck sign, lights or gates at crossings.
5. Listen for warning bells and whistles.
6. Obey the signals.
7. Wait for the train to pass through the crossing, then wait again, to be sure that a second train is not approaching on another track int he same or opposite direction.
8. Obey the directions of a police officer or member of a train crew directing traffic at a crossing.
9. Cross the tracks in low gear; do not change gears while crossing.
10. Stalled vehicle? Get out quickly and move away from the vehicle and tracks.
Report hazardous conditions at highway-railroad crossings or on railroad rights-of-way. Railroad emergency numbers are generally posted prominently at crossings, on either crossing posts, behind a crossing sign or on a signal box. You may want to keep the toll free number for CN Police handy. Should you witness any unsafe situation near the railroad, please call 1-800-465-9239 FREE. If you are unable to locate this number immediately, call 911 or the local emergency number.
Since 1980 the number of highway/railroad crossing collisions and trespassing incidents has fallen dramatically largely due to education efforts. Please share these safety tips with family and friends and act as a role model for all. We encourage everyone to support help CN's community-education program, All Aboard for Safety, to help prevent fatalities and injuries on or near railroad crossings.